We started this foundation to:

• be the voice and bring awareness to such a debilitating disease

• advocate for faster and more reliable diagnostic tests, pre-surgical and post-surgical protocols, including short and long-term follow-up, and a smooth transition of care for comprehensive supportive services based on body, mind, and spirit connection to healing the whole person

• providing guidance and support in the medical community for standardized protocols in the diagnosis and treatment of MALS patients

• educate those patients and family members who are looking for information that may help them on the path to getting answers for their pain and suffering, and for clinicians who are looking for answers for their patients.

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The good news is there’s hope for symptom resolution through managed care, surgical treatment, and incorporating various traditional and complementary/alternative therapeutic modalities. We just need to work together to ease the paths of more patients and to educate an increasing number of clinicians.