有帮助的非营利组织
The Non-Profits below are ones we personally work close with.
France
An association under the 1901 law recognized as being of general interest, it was founded with the aim of supporting, informing, raising awareness and participating in the improvement of care pathways and the management of patients suffering from Nutcracker, Cockett/May-Turner, Wilkie and Dunbar vascular compression syndromes.
Spain
AESCOV is a non profit organization made up of members who suffer from vascular compression syndromes. These compressions include Nutcracker Syndrome, May-Thurner Syndrome, Superior Mesenteric Artery Syndrome, Median Arcuate Ligament Syndrome, Inferior Vena Cava Syndrome, Pelvic Congestion Syndrome, Thoracic Outlet Syndrome, Budd-Chiari Syndrome, among others. Our aim is to help everyone who is in this maze of vascular compression syndromes and simultaneously claim a medical and social treatment comparable to the one that patients from common diseases receive.
.png)
We are a group of patients with Ehlers-Danlos Syndrome (EDS) and Abdomino-Pelvic Vascular Compression Syndromes, which include Dunbar Syndrome (MALS), Nutcracker Syndrome (NCS), Wilkie Syndrome (SMAS), May-Thurner Syndrome (MTS), and Pelvic Congestion (PCS/PVI). We know what our fellow patients are going through. Our mission is therefore to accompany them on the difficult journey through these diseases. To learn more, read our site and become a member of our patient group.
Slovokia
United States of America
Superior Mesenteric Artery Syndrome Research Awareness and Support is a registered 501c3 nonprofit organization. They are solely unpaid volunteers. They are also the first and only SMAS nonprofit organization to provide financial assistance to SMAS Patients. They are dedicated to promoting healthcare opportunities for underinsured individuals and promoting research for improved healthcare for all members of the SMAS community. They also strive to educate both the medical community and the public about SMAS with the hope of increasing the chances of early diagnosis. They also work under the name of SMAS Patient Assistance.
地址
邮政信箱 1292
戴德姆，MA 02027
跟着我们！
版权所有 ©2020 National Median Arcuate Ligament Syndrome Foundation, Inc. 保留所有权利。国家 MALS 基金会是一家注册的 501(c)(3) 非营利组织。请注意，国家 MALS 基金会在本网站上提供信息是为了 MALS 患者和临床医生社区的利益。国家 MALS 基金会不是医疗提供者或医疗保健机构，因此既不能诊断 MALS，也不能认可或推荐任何特定的医疗方法。在寻求与 MALS 诊断和治疗相关的任何信息之前，患者必须依赖其合格医疗保健专业人员的个人和个性化医疗建议。
© 2022 MALS 基金会