有帮助的非营利组织
The Non-Profits below are ones we personally work close with.
France
An association under the 1901 law recognized as being of general interest, it was founded with the aim of supporting, informing, raising awareness and participating in the improvement of care pathways and the management of patients suffering from Nutcracker, Cockett/May-Turner, Wilkie and Dunbar vascular compression syndromes.
Spain
AESCOV is a non profit organization made up of members who suffer from vascular compression syndromes. These compressions include Nutcracker Syndrome, May-Thurner Syndrome, Superior Mesenteric Artery Syndrome, Median Arcuate Ligament Syndrome, Inferior Vena Cava Syndrome, Pelvic Congestion Syndrome, Thoracic Outlet Syndrome, Budd-Chiari Syndrome, among others. Our aim is to help everyone who is in this maze of vascular compression syndromes and simultaneously claim a medical and social treatment comparable to the one that patients from common diseases receive.
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We are a group of patients with Ehlers-Danlos Syndrome (EDS) and Abdomino-Pelvic Vascular Compression Syndromes, which include Dunbar Syndrome (MALS), Nutcracker Syndrome (NCS), Wilkie Syndrome (SMAS), May-Thurner Syndrome (MTS), and Pelvic Congestion (PCS/PVI). We know what our fellow patients are going through. Our mission is therefore to accompany them on the difficult journey through these diseases. To learn more, read our site and become a member of our patient group.
Slovokia
United States of America
Superior Mesenteric Artery Syndrome Research Awareness and Support is a registered 501c3 nonprofit organization. They are solely unpaid volunteers. They are also the first and only SMAS nonprofit organization to provide financial assistance to SMAS Patients. They are dedicated to promoting healthcare opportunities for underinsured individuals and promoting research for improved healthcare for all members of the SMAS community. They also strive to educate both the medical community and the public about SMAS with the hope of increasing the chances of early diagnosis. They also work under the name of SMAS Patient Assistance.